Thursday, August 29, 2013

Weekend away.

We went to "The Cabin" this weekend for Sam's birthday. There was much fun involved. There also happened to be a lot of fighting (between Sam and Nate) and a lot of wine (thanks Memere) but most of all lots of great stuff.
We enjoyed some time with Memere and Pepere.
There was much cuddling.

Evangeline turned 6 months old!
Sleepy half birthday

We found a cute little breakfast place in Littleton called The Coffee Pot. The food was pretty good and the coffee was OK. The service was AWESOME! Evie sat in a highchair for the first time. She bobbled around a little and the waitress came and duct taped her lovie to the table so she would get hurt. It was very sweet. Evie also enjoyed her first taste of cantaloupe.

Sister cuddles
first taste
We found a cute little swimming hole on Rt112 . The kids found a toilet shaped rock and some super shiny rocks as well. I got to play with my camera settings and the kids enjoyed jumping from the rocks.

We went to Chutters and checked out the longest candy counter in the world! We even found some all natural gum the kids could have.
Nate could barely contain himself

In front of the candy counter.
We discovered this weekend Sam loves to sing and it really annoys Nathaniel.

We cuddled by an Epic fire that Tyler built. Tyler rode the lawnmower and cut the grass and the boys helped him.
Tyler and his handy work

Wine and Snuggles. It doesn't get any better.
We met a giant wolf spider on a free stroller.(ok maybe not giant but big enough) and Nate was thrilled by it.

How was your weekend?

Grace was "tickled" with the flowers outside Chutters

Wednesday, August 28, 2013


Sam is 9 now. It's so hard to believe that time has flown by like this. It's been 6 years since his DX and he has made amazing strides!

He wanted pancakes for breakfast and so he got that. I made him some special pancakes. He was pleased.
He wanted meatloaf for dinner, stuffed with cheese, and covered in a bacon blanket.

yes that is bacon weave 
My mom made him a cake because Nanni makes the better frosting.

We left that same night for his trip to the cabin.
More on that tomorrow.

Thursday, August 22, 2013


Let me very clear. I am proud of Sammy and who he has become. I am amazed by Sammy and everything he is. I love him so much that it hurts to try and quantify it.

But it is often hard. It is usually a challenge. It is always just a little extra effort.

It's Sammy.

My rainbow boy.
The boy who smiles from inside out even if he doesn't ever smile back at me. He loves to hug me these days and always asks "Why do you smell so good there Mommy?"  He tells me now that he has big feelings. He cries from sadness now as well. It isn't just angry and happy. But , he still has some of the most annoying stims (currently a screech), he calls names when he gets even a little bit angry, and he hits. He makes me so angry sometimes that I want to run away from home. Just take the itty bitty and go far far away. But to think about life without him makes my eyes burn and my throat catch. He is after all my rainbow baby ...right?

He has taught me so many incredible things. Far more than I have taught him. He frustrates me beyond belief and makes me so very proud every day.
Some days, like today, it's hard to breath. The weight of life with Sam  can often feel like falling into an endless hole filled with jello.
Green Jello.
My Nemesis.

What is the alternative though?
Life without? I know what that is like to some degree. I don't have my Emma with me.
Sam Blowing out the candles
So my Darling Rainbow Boy,
Please know I love you with all that I am. Every moment. Every breath. Every second of every single day. Forgive me for the tears that fall because sometimes the bittersweet of it all is just too much to hold inside.
Emma's angel Dan Bought in 2010 for me

My Dearest Emma,
Please know that even though i spend the day laughing and celebrating you are also so very close to my heart. Know That I love you as well, though I never held you in my arms. There will always be empty space where your hand belong in mine, silence where your name belongs on my lips, and longing in my arms for you.

Happy Birthday My Sunshine Boy Sam and Dearest Emma.
today we celebrate all that you are.

Monday, August 12, 2013

Bad Parents

I aim to be gentle with my children. I try to listen to what they say before I react. No good comes from jumping off the mountain and assuming the worst. Right? Well today Nate lost it. he just started crying over something and was so upset and angry he turned all red in the face. I laughed because it caught me off guard. This of course made him feel like I was laughing at him and that made him even more upset.
Instead of being the mother I ry to be, I lost my temper and sent him up to his room. The exact stuff I try to avoid.
It all worked out ok.

My Dearest Nate,

 You are often such a perplexing ball of boy stuffs. You are so full of life, energy, love, excitement, and emotion. Sometime I know I am too hard on you and your 6 year old self. I pray every day that I am not creating damage in your being. I love you so my little butter bean. I need to remember to look through your eyes more often like I did today when you were so sad about the lobsters. Your tiny heart ripped apart because you were so excited.

My dear boy you feel everything so acutely. You and Sammy find joy and love in the simplest of things. Rocks, sticks, bugs, and plants all bring you so much joy. I love watching you seek out everything you love.

I love your power and strength to do as you see fit. The confidence in which you seek the world astounds me because I am often too meek. you may handsome little boy are a force to be reckoned with.

I hope I have taught you that everything around you is a gift from God and deserves to be treasured. I understand your anger when others do not understand you. I appreciate you child and your ability to stand for the truth. You make me so proud.

I have watched you every single day of your life, never missing one day. I am amazed by who you are and what you have become. I cannot imagine how incredible an adult you will be. I am inspired by the carefulness in which you accomplish things. You are such a gift to me.

I know today was tough and I tried to help you gently, because its your tomorrow I am shaping. There is no room for cruelty and anger here. Just love , my sweet boy. I am sorry I yelled and sent you to your room when all you really needed was an extra hug and reassurance. You did not deserve that from me. you deserved to have your trust in me honored. I could promise not to ever make that mistake again but we both know it might happen.
You forgave me easily and snuggled beside me and our hearts healed together.
You are the epitome of love my young son and I am so very proud of you. Keep up the good work.

I have watched you the last few days and weeks finding your own self and dictating more of who you are to the world around you. Allow me to keep up with you darling boy and together we will get where we are going. I want to hold your hand and be beside you. I may not know all the answers but I do know some. Trust me as you learn to trust yourself.


Thursday, August 8, 2013

When Your Rainbow Baby Brings a Storm

For those of you that don't know what a rainbow baby is.

A "rainbow baby" is a baby that is born following a miscarriage or still birth.

In the real world, a beautiful and bright rainbow follows a storm and gives hope of things getting better. The rainbow is more appreciated having just experienced the storm in comparison.

The storm (pregnancy loss) has already happened and nothing can change that experience. Storm-clouds might still be overhead as the family continue to cope with the loss, but something colorful and bright has emerged from the darkness and misery.
"We lost our last pregnancy, but now we have a rainbow baby."
~Urban Dictionary~

Sammy was my rainbow baby though I had never heard that phrase before. Rainbow babies are supposed to bring closure and joy and peace. He brought those things simply because he was a baby. He was born during an extremely tumultuous time in my life. there wasn't much peace about me. I also had not come to terms yet with Loosing Emma and so I never felt that relief other people might have. It doesn't help either that I lost Emma on the same day that Samuel was born.

Sam is a thunder storm in the making. He rumbles like thunder in the distance and often strikes like lightning. The storm rages in him some days as he rumbles by. It's over almost before it began.
No amount of discipline will ever change that. Nothing I can do controls the storm in him. He is simply, himself.

He has been particularly difficult this summer. Part hormones and part dis-regulation. He has been next to impossible.We are waiting for a therapist for him. I can't help but love this kid though Freak outs and all. It can get ugly here. As bad as it can be, he still hugs me and snuggles in. He squeezes me tight and asks why I smell so good. He also calls me names when he is angry. It can be maddening. While I can't change the autistic parts of him (and honestly I am not sure I would if I could) I do wish it was easier for him. I do wish life wasn't so much work for him. I do wish he was happier in his own skin. I spend hours up at night worried about the choices we make. Until you have had your own Special Needs child you can't possible understand what it is like to parent one, worry about one, love one, fear one and settle one.
He was supposed to be my rainbow baby. So what do you do when your Rainbow baby also brings a storm of his own?

Wednesday, August 7, 2013


Every year Sammy has a party and no one comes. Every year he doesn't get to invite friends because I drop the ball and forget to send out invites to people for him. This year it might be different. If no one comes it might make me sad though.  This year I remembered to send invites to ESY with him. YAY


Being autistic isn't easy for Sam. there are so many people who just don't get it. People are ignorant and think that because they see it from the outside , they know better.  While there are so many people in the world like that I try to just ignore the stupidity. I smile and speak calmly and walk away. Because, those of us in the trenches know differently, don't we.

It's hard for Sammy to make friends but it seems we have hit the proverbial jackpot with this homeschool group we have joined. Two specific boys, both spectrum kids, and a mom who really gets it. What a blessing. Sam also made a friend at ESY this year.

It seems that this year he might truly have friends at his birthday party.

I am so excited I can hardly stand it. I hope they come.