Thursday, December 9, 2010

waiting to exhale


Sammy should be home any minute. He brought home a note the yesterday in his communication book that he was having a tough time. He's having a tough time here as well. I am so tired and frustrated and just done. he pretty much wants to live in jammies without shoes on. Can't send him to school like that can I. I almost wish he would go back to wearing only his spider man costume, at least that he would wear shoes with. I just feel like I can't win.

Another ridiculous morning at home. I have realized that if he has a bad morning Nate has a bad day. it spirals out of control and I am left here dealing with it all.

i came in today to Sammy sitting at the breakfast table in his polar bear jammies(thanks Donna) "look mom I'm having breakfast, its oatmeal" so cute ... so normal.
Until he made eye contact with his shoes and started to cry and freak out. He hadn't even put them on yet. then he spotted underwear...OH THE TERROR. he went off to school with all his clothes on and me completely exhausted.
I'm sitting here knowing his bus should be here soon and I am just waiting to exhale.

6 comments:

  1. Yep. Exhale. Breath deeply. And move forward. My ASD guy and I have started doing 40 minutes of yoga about 3 times a week and it has been awesome! He absolutely love the calm, relaxation, stretching, and balancing. It is hard to fit it in our schedule and my 2 year old messes us all up, but it still is working...very well.

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  2. Wearing pyjamas is a big past time here and because my son is so young I don't do the battle, for now I have figured out how to get clean trousers on him in the morning and he wears it with the pyjama top. Shoes, I can't think about shoes *sigh* Some things are universal in autism and shoes is one of those things! Jen

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  3. Oh, those sensory issues are so hard and SO frustrating for everybody involved. Hang in there, you're not alone!!!!

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  4. Those days are so frustrating. I've stopped buying the cute outfits for my guy that I would like. The jeans might be adorable, but if he's not going to wear them, what's the point? I've been getting him athletic clothing because it's softer and more comfortable and as long as we're not going to the playground or somewhere that he NEEDS to have sturdy shoes he wears Crocs. You know the kind with the fuzzy insert. I don't know if that will help at all. At home he walks around with no pants on. No shoes. No socks. *sigh*

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  5. I find that this is an ongoing cycle. We're up and then we're down. My little bird is just so cyclical. But every time she is down I forget this and I freak out, until she starts coming out of it and it all becomes clear again. These ups and downs are just devastating.

    Hang in there, ride the wave. We're all in this together.

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  6. (((hugs))) you're definitely not alone. I can relate to those days (sometimes weeks), and mornings can be especially rough. I think MT2B may be on to something with the yoga, I have found that our guys tend to do much better when they are able to get plenty of exercise / "heavy work" type activities. Hang in there!

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I love hearing from all of you.It reminds me that people really do read this thing.